Basically I was told I had epilepsy given some medications and then sent on my way not understanding what types of seizures I had, the side effects of my medications I had been given and sent on my way by a friendly staff which left me with a hefty medical bill and a lot of unanswered questions. I thought my life wouldn't change, then when I realized it would I sort of let it for the 6months the state took my drivers license away but in the end I went back to my life just differently. My head hurt all the time, I had that pins and needles feeling in my hands and feet when it was cold, I could no longer tolerate the same foods, my memory was bad before and just got worse, I forgot so much like the date or where I put my keys and my temper was short when I wasn't acting like a walking zombie. Finally, I spoke up but all that was attempted was small changes to my dosage which only made the issue worse so everything was left alone while my headaches increase in frequency and pain. My memories started to fade away, I was notified of my high school reunion and realized that unless I had been interacting with my former classmates on social media I didn't not recognize their names nor did it help much to dig up my old yearbook. Something had to be done and of course my always hero Mom had an answer already. She found a new neurologist through a family friend who I had spent many hours watching their kids. One thing I do remember is he was somehow involved in one of Rachel Leigh Cook's films (see video) cause he asked me to watch it after I put his kids to bed one night and fill out some paper about my opinion on it. My new neurologist says he's up for the challenge
I am thankful for those who made this happen so the first thing he did was toss the topamax because if I have headaches and migraines it was pointless to take a medication like that as it obviously wasn't helping. This is easier said than done, as I have to take 25mg out every 7 days (that is how toxic this medication is not to mention it is interacting with how my brain functions) as the dose gets lower I am in so much more pain (though I do have medication for this) and lights, rapid movement and even placement of objects can cause instant pain or trigger seizure if I am not really careful. For example, I watched Captain America: The Winter Solider with higher level of topamax in my system and then watched with less topamax and the second viewing left me with a headache and several times I covered my eyes during fight scenes. May sound weird but it's one of the things I had been complaining to my primary care physician for years before my diagnois that flashing lights were bothering me. Anyway, I am supposed to be having an EMU done in a few weeks so he can get a better visual on what's happening in my wacked out brain. In the meantime, at this office nobody is really friendly and I am less zombie but i am not sure that just due to the constant pain from headaches (no I won't keep popping pain meds like they are vitamins not an option) So, is this really the life i lead now? Zombie Girl or Pain Prison? Hoping I am biding my time until dr gets a better view and has a third option course that will change things again won't it? At this point productive member of society works for me, when you can't do basic math or recall simple facts this option is looking bleak because soon I can't blame the side affects of topamax.
