Wednesday, May 8, 2013

One, Two, Three, Four....



I know that I can add correctly. Especially when it comes to my medications because I have epilepsy which affects my brain I have taken measures to ensure that I carefully count out my medications so I don't make a mistake. I choked on my pride and bought a large (because there were so many big pills) weekly med container at my local drug store and two (ok I did cave and picked out the decorative ones) portable med cases. Every Sunday I kick everyone out of the home office and fill my weekly box then squint my eyes as I have my husband check it for any errors I have made. (so far none -knock on wood) So today when I went to take my meds I was short and I realized I had ignored my iphone alarm when it went off earlier this week trying to tell me that I was out of one med. I called my neighborhood pharmacy. Except, it seemed it wasn't my counting I should have been worried about.

"Your insurance company won't pay for a refill until May 18th because we gave you a 30day supply on April 18th", was what my friendly neighborhood drug store clerk was telling me but what I was hearing was 'YOU ARE SO SCREWED!!!' I was already short a pill and not feeling well. How was I going to survive ten days without my medication?! I knew I did not mess up, I would have had to been double up pills during a dosing time and this was Topomax which with every 25mg increase puts me to sleep as in one bite of a red apple sleep. I've been walking my kids to school and getting out in the community so there's no way I have double dipped in the lullaby meds. "Can you please hold?" Oh, it seems I am still on the phone, I got a bit lost in my panic. Because this moment triggered that deep fear of what will I do now that I am dependent on a medication to survive? My country works on a for profit insurance companies not for people. I may be a hard worker and I may have had jobs since I was twelve but now I am not working for food, clothes, shelter I am working to keep alive because the wrong seizure and I can die or my brain can be severely damaged instead of just scarred as it has been thus far. "Your insurance will refill the script on the 11th", she tells me. Ok. I am told breathing a little easier. Before I ask what should I do until then, she tells me that they will make up a duplicate label and I will be covered until the meds are refilled. She alludes that she is aware this is not my fault, apologizes and tells me that they will be ready immediately. Considering my biggest issue is getting to my neighborhood drug store when it could have been so much more, I will take it. However, this makes me more resolved to be the change for those who are standing in a panic wondering how are they going to get the meds they need and then the ride to go pick up those meds. I said it before, epilepsy picked the wrong woman. Today Epilepsy 0  Me 1  (I did have help and luck on my side and I intend to play it forward)